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This article
highlights how treatment ethos, aims and regimes can affect outcome. It views
retrospectively how an institutionalization mentality can sabotage efforts to
treat. Furthermore, it can potentially cause a conflict between patients and
therapists.
Although the example
is drawn from personal experiences as a therapist the institutionalization
mentality appears to be permeating society in general, by making exceptions for
everything, victimisation appears to be in vogue. This is potentially a serious
situation leveling down is unhealthy and undermining in terms of a healthy
society. A healthy society needs to have survival characteristics such as
robustness and resilience allowing for progression and adaptation.
Keywords: Rehabilitation, Institutionalised thinking, Psychiatry, Adherence,
Motivation, Resilience, Outcome
Newly appointed to working in a
psychiatric hospital and coming from the sphere of general rehabilitation
followed by neurological specialisation I was not part of a department with
colleagues from whom I could take my cues. I was just a lone therapist feeling
my way in the world of mental illness and its various diagnoses and treatments.
My initial training was along military lines: very regimental and
prescribed. It was concerned with the physical and mental rehabilitation of
patients following trauma from accidents or following a stroke etc. The aim of
the medical team whatever the diagnosis was to get the patients back to work
and leading a normal life as soon as possible. It involved the commitment of
both staff and patients. It was a busy dedicated environment. With very clear
aims which both staff and patients understood and appreciated [1].
At the medical rehabilitation centre where I was trained and
then subsequently worked, each patient carried a card on which was printed
their prescribed programme. The programme was meticulously put together
involving the medical team: The centre manager, the surgeon, the general
physician, occupational therapists, physiotherapist, remedial gymnasts,
industrial therapists. The programme was progressive and updated regularly and
a great deal of forethought and commitment was put into these individualised
programmes by the treatment team.
If a non-committed patient was found being late or worse still avoiding
a particular part of his/her programme their place would be in jeopardy; the
regime was strict but fair. A reluctant patient would infect the other patients
and the purpose and work of the centre would be undermined. The manager would hold
a dance on Wednesday evenings for the enjoyment of the 80 residential patients.
However, another element of the dance was to watch patients suddenly motivated
to do without their crutches and support and dance a passable quickstep
whisking their partners around the dance floor. If they were hanging onto their
ailments in an attempt to avoid discharge; the manager; a former Royal Air
Force man who understood man management would take notice. Unbeknown to the
patients the dance was a valuable source of evaluation and tripped the switch
for discharge on the following Friday on some occasions.
Moving to the psychiatric hospital I was ready to contribute to the same rehabilitation ethos where improvement via motivation resilience and discharge were the goals. However, I found adapting to the different aims in the psychiatric hospital confusing [1]. It did not have a focus; the aims were unclear. It seemed it was more about containment and stabilisation. I was confused by the diagnoses they seemed ambiguous. Whereas there was no confusion in general rehabilitation: a fracture is a fracture a stroke is a stroke. The role of the therapist is to understand the individuality of the patient and treat the diagnosis to a prescribed regime.
In the psychiatric hospital it was
different most patients were receiving medication which meant that the
formulation of and understanding the individuality of each patient was
difficult, it took time. Furthermore, there was not the compulsion to discharge;
the patients were there for as long as it took - perhaps forever. Indeed, some
patients had been incarcerated for years. The motivation as a therapist which I
had to bring to the treatment and the momentum was curtailed and deficient.
There were no set timescales which both
the therapist and patient aimed for. I could never give the psychiatric
patients feedback or use an agenda, such as; when you can walk without a stick
you can go home. The patients in the psychiatric hospital had relapses, the
effect of the medication was not always predictable they were perhaps excitable
one day depressed the next.
The staffs too was different, they were
not motivated by a proactive approach they were more relaxed, less busy and
accepting of the behavior of their patients whatever it happened to be. The
hospital was used to the abnormal whatever or however it was manifested however
extreme [1].
While I was trying to navigate a role for
myself, I noticed a young man who was obviously brain damaged with a right
sided hemiplegia. Having specialised in the treatment for brain damage, I found
out which ward he was on and asked if I could treat him. The charge nurse made
the arrangements for the referral and I started treating him. He had severe
deformities which should have been prevented but nevertheless I felt I could
improve his physical condition. I suspected he should not have been
incarcerated in the first place as a cerebral palsy patient. It appeared
inappropriate that he should be in a psychiatric hospital. I hoped that my
contribution could get him into a unit catering for cerebral palsy.
One day he came for treatment with a
laceration on his arm “Have you been in the wars” I asked? Yes, he said I
punched a window. Somewhat concerned I mentioned this to the charge nurse who
accepted broken windows as a normal occurrence. Almost encouraging a broken window
rather than an assault on another patient in the ward under his care.
On another occasion this patient turned up
for treatment with another laceration this time on his nose. Again, I asked him
what had happened “Jonny bite my nose” he explained. “How did that happen” I
asked concerned.” He wakes me up every morning by trying to bite my nose this
time he succeeded. Once again, I was annoyed that this behavior was accepted as
the norm even by my patient.
My hopes that the patient would eventually
be rehabilitated and discharged were unrealistic, if every time when he and
other patients felt frustrated, they broke windows. It was considered normal
and acceptable behavior. This embedded reaction to frustration would be
extremely difficult to extinguish and move him from the asylum and to
concentrate on his future [1].
Another incident surprised me: I had
instigated games as recreational therapy for the psychiatric patients: a very
important ingredient in general rehabilitation; a means of exertion and fitness
through enjoyment. At the asylum I also saw it as an alternative activity to
deal with the frustrations of the patients. I introduced games such as
volleyball, rounders and badminton. Some psychiatric nurses thought the
formation of a badminton group would also be good for the staff. I agreed to
help them and allowed them to use my equipment and to teach them the rules of
the game. On the first night all was going well until a nurse disagreed with
the scoring made by her partner. She swore, her language was unprecedented and
she threw the racket on the flour breaking it. The next day I felt I needed to
apologise for the outrageous behavior of another woman - a nurse, a
professional. The nursing officer amazed me by explaining her behavior away
excusing her because she was pregnant.
I did not appreciate that what I was
witnessing was the effects of institutionalization “referred to as the process
of embedding some conception (for example a belief, norm, social role,
particular value or mode of behavior) within an organization, social system, or
society as a whole. I had to be mindful that I too along with the staff and the
patients did not fall fowl of the institutional mentality [1].
Sadly, mental illness isn’t treated in a
similar manner to physical illness.
In this day and age there appears to be a
danger that our society is suffering the same institutional mentality. When all
behavior is accepted as causal and excuses are made on the grounds that behavior
is understandable. I question if this trend is helpful and sustainable for the
general good. At what point should the line be drawn. While every endeavor
should be made to maintain a level playing field and include everyone, isn’t
there an argument that in life the playing field is uneven and we need to navigate
it ourselves not to rely on the generosity of others to even it out - because
nearly everyone is a victim of something or another. Victimisation and its
partner medicalization are bandwagons of increasing proportions which society
endorses, even encourages in succinct ways.
This undermines the aim of the therapist.
There are incentives to remaining patients. As therapists we need motivation,
commitment and resilience, in our patients’: characteristics which are crucial
to successful rehabilitation and final discharge. But how are we to respond by;
leveling down regressing to institutional norms denying our patients: like the
patient I describe normality. The consequences are costly and question the
sustainability of such a situation. Or are we going to level up as the natural
evolutionary process of progression.
My various published case studies have
been intended to help those caring for patients experiencing psychic pain and
the outcome if the patients don’t get the support they need. There is no excuse:
for years for example the suicide rate has increased [1]. An estimated 1
million people worldwide die by suicide every year. It is estimated that global
annual suicide fatalities could rise to over 1.5 million by 2020. Globally,
suicide ranks among the three leading causes of death among those aged 15-44
years. Attempted suicides are up to 20 times more frequent than completed ones.
Theory and statistical trends are businesses in themselves but what is their
value if nobody does anything to change - data is dead unless activated.
I am not following my colleagues who
suggest more resources and money should be thrown at prevention and
intervention by way of treatment [1]. The problems highlighted require a
different more common sense and pragmatic way of seeing things. Seeing things
in society which need remedying such as marrying for infatuation etc. and
having children without the necessary commitment to their overall well - being.
Failure to equip children with the foundation they need to thrive and to succeed.
Schools educate children for a large part of their developmental lives;
however, I can’t help wondering if education isn’t failing to teach about the
core needs of every child - survival.
For those who do need treatment therapists
need to understand psychopathology from the point of view of the patient. They
need to use the suffering which can be tapped to harness their creativity.
Making their experiences part of the journey turning them around. However bad a
child’s background if they have survived so far it speaks volumes about their
self-belief, their resilience and that resilience can be a key factor in their
future. It can become the fuel to drive them forward. They then can become good
parents and good citizens rather than being a burden on society [1].
Professionals involved in treating and
caring frequently come from very different back grounds so often far removed
from their patients. The professionals are often privileged and have enjoyed
feelings of love and security. They have no idea, despite their best endeavors,
at empathising or comprehending what it is like to be a child whose parents
feed them drugs to keep them quiet while they go out partying. Or of children
forced to have sex because their parents are exploiting them. Such cases are
often never disclosed, because the victims from experience know full well, they
will never be understood, or believed. Extreme victims of incest or pedophilia
for example are so abhorrent they can never be fully healed so compromises have
to be made and understood [1].
The task is enormous: The point I am
making is that these vulnerable patients are very wary. They test out where and
to whom and if it is safe to disclose these past experiences. It was not
unusual for me to see patients who had been receiving treatment all their lives
but had never felt enough trust to divulge their experiences. Therapists often
lack the same power generated by adversity, they need to taste pain and
acknowledge what is missing from their tool kit.
1. Rutter M (1999) Resilience concepts and
findings: Implications for family therapy. J Fam Ther 2: 119-144.
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